And it’s not fair a lot of the time. And it’s hard to not fall into negative thinking. Especially when you see someone fall ill with a horrible disease called ALS. My friends Janet and Don are traveling this road since Janet was diagnosed a few years ago. In the past month and a half, her condition has worsened dramatically, which is hard to see.
She and Don have been married over 50 years, and have three children. I’ve been friends with them since my first marriage, and that was so long ago. We’ve kept in touch and remained friends all these years. It’s so hard to see this horrible thing happen to such good people. They both worked hard, fulfilled their obligations, went to Church, and would give you the shirts off their backs. Good, salt of the earth blue collar people.
Janet still remembers people, and has a winning smile that warms your heart. Her talking is limited, and you can tell she’s thinking. Don still teases the heck out of her, but is serious when it’s warranted. It’s a great example of commitment. He’s pretty modest about it, and brushes it off as what everybody is supposed to do. Lots of people would turn tail and run. Or be angry. No time for that. Don’s goal is to keep Janet comfortable for as long as possible. It’s just what she would do for him if the situation was reversed.
Sobering as this is, it is still hard to see such good people hurt by this. The disease can happen to anyone; it can be genetic or environmental or neither; it can begin early or later; it robs the patient of dignity for sure. How it selects it’s victims I don’t know. How it hurts the family shows in their tired eyes, their slumped shoulders. They carry on, they go throughout the days, one the same of the next. Their exhaustion grows.
All I can do is continue to visit and break up their days; they have so many friends to visit. Janet deserves that. She has always been a good friend to others and it’s beautiful to see the folks coming to visit her today. She deserves this. Don deserves this, too. Visiting will continue, no matter how long she has left. With the decline in the last three weeks, it’s anybody’s guess.
The other thing, I can pray for comfort for Janet, and strength for Don’s soul. And continue to visit. When all else fails, give the gift of your time. It’s the least we can do. Take care of each other. Keep each other safe. We are all on borrowed time. Love one another while we can.
And let’s care about what really matters. It’s not the Kardashians, Depp v Heard, or TikTok. It’s people and love and promises kept. It’s families and grandchildren. Learn what’s important, and hold it near to you. Have a beautiful evening. See you tomorrow.